Things have not really changed with Cecilia's status, other than as of last night her sedation is being weaned more to the point she is not out cold in dream land at all times. I don't think we would be at this point today if Karl and I did not speak up about our thoughts and feelings regarding how high her sedation was and how frequent her PRNs were. They did run some more tests to try and figure out a cause of Cecilia's respiratory issues, and there has been no findings. They checked her diaphragm, and have been checking for infections, ect. We've made the initiative for second opinions from CHOP and are eager for any answers and insights as opposed to having none.
I am going to spam a few pics of my day with Cecilia on Wednesday. Usually I write my blog late at night, after midnight, so when I am talking about the day it comes out wrong. The blog Nothing Major, was a picture of Cecilia technically on Sunday. So Here is Cecilia on the "real" Monday :)
And Cecilia on Wednesday morning:
See her new hairbow from Sarah
later on in the evening, Cecilia awake with Mommy
Hello, Hello Remember me?