Something I made for Cecilia's scrapbook this week
Karl keeps reminding me I need to set up a trip to Boston to visit the hospital and meet the doctors since this is where we want her Fontan to take place. I just can't help living in the moment and letting myself enjoy our lives. Maybe I dont want a reminder that our daughter needs more surgery and that she is not "fixed". Maybe just for one day...but if I was given a day, I would probably ask for a week, and a month and altogether I would finally ask for an alternate reality. This is our life and the only option is to deal with it.